DB Chech tor updates Article Violence Against Women To Tell or Not to Tell 1 tae Arai ans Reprints and permissions tagepub com journatsPermssions nav. DOK: 10.1177/1077801215590672 yaw sagepub.com, (SISAGE Carrie M. Carretta', Ann W. Burgess’, and Rosanna DeMarco? Abstract The underreporting of rape is well known; however, there is less information on women who fail to disclose to anyone. This online study suggests that 24% of 242 women who were non-disclosing compared with those who had disclosed were significantly less likely to seek treatment for emotional injuries. Also, almost two thirds of non-disclosing women believed that the abuse was their fault versus 39.1% of women with prior disclosure. Of clinical interest is that regardless of disclosure pattern, there was no significant difference in reports of depression, anxiety, or posttraumatic stress disorder (PTSD), and the majority of respondents endorsed support for online counseling over telephone or individual contact. Keywords rape, disclosure, depression, anxiety, PTSD Background For centuries, rape thrived on prudery and silence. The silence lifted when conscious- ness-raising (CR) groups became the major organizing tool of the re-emergence of the women’s rights movement in the late 1960s. These CR groups involved informal groups of women discussing their experiences with incest, child, adolescent, and adult rape. Prior to that time, women who disclosed a sexual assault to law enforcement risked censure, scorn, indifference, or loss of credibility (Ledray, Burgess, & Giardino, 2011). ‘Rutgers, The State University of New Jersey, Newark, USA *Boston College, Chestnut Mill, MA, USA *Uneersity of Massachusetts Boston, USA, Corresponding Author: Carrie M. Caretta, Assistant Professor/Research Faculty at Rutgers, The State University of New Jersey, 180 University Avenue, Ackerson Hall, Room 224, Newark, Nj 07102, USA. Email: carrie.carretta@@'sn rutgers.edu; carrie.carretta@ilgmail.com 3502-014 Page | of 21 EFTA_00001434 EFTA00156775

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1146 Violence Against Women 21 (9) Early published evidence by Smith et al. (2000) indicated restricted disclosure of women who reported being raped. They gathered representative data from 3,220 Wave Il respondents from the National Women's Study telephone survey regarding the length of time women who were raped before age 18 delayed disclosure, to whom they disclosed, and variables that predicted disclosure. There were 288 women who reported at least one rape prior to their 18th birthday. Fully 28% of child rape victims reported that they had never told anyone about their child rape prior to the research interview and 47% did not disclose for over 5 years post rape. Close friends were the most common confidants. Younger age at the time of rape, family relationship with the perpetrator, and experiencing a series of rapes were associated with disclosure longer than 1 month. Shorter delays were associated with stranger rapes. Logistic regression revealed that the age at rape and knowing the perpetrator were independently predic- tive of delayed disclosure. Relevant to these findings, Fisher, Daigle, Cullen, and Turner (2003) identified key factors that contributed to rape reporting included the impact of self-blame, the seri- ousness of the incidents, type of victim—offender relationships, certain victim charac- teristics (¢.g., age, income level, education level, race), and the contextual characteristics of the crimes. Starzynski, Ullman, Filipas, and Townsend (2005) emphasized that deciding whom to tell about sexual assault is an important and potentially consequential decision for sexual assault survivors. A diverse sample of adult sexual assault survivors in the Chicago area was surveyed about sexual assault experiences, social reactions received when disclosing assault to others, attributions of blame, coping strategies, and post- traumatic stress disorder (PTSD). Women disclosing to both formal and informal sup- port sources experienced more stereotypical assaults, had more PTSD symptoms, engaged in less behavioral self-blame, and received more negative social reactions than those disclosing to informal support sources only. Research shows that survivors with lower levels of posttraumatic stress or depres- sive symptoms are less likely to seek help from formal social systems (Lewis, 2005; Starzynski et al., 2005). In addition, survivors who blamed themselves for causing the rape were less likely to disclose the rape to formal social systems (Starzynski et al_, 2005). Although studies have shown that survivors with less severe psychological symptomatology are less likely to seck assistance, it is still unclear what prevents these survivors from seeking help. Ina mail survey with 155 respondents studying how social reaction to rape disclo- sure affects sexual assault victims, Ullman (1996) found that negative social reactions were strongly associated with increased psychological symptoms, while most positive social reactions were unrelated to adjustment (Ullman, 1996). The only social reac- tions related to better adjustment were being believed and being listened to by others. Wolitzky-Taylor et al. (2011) interviewed a national sample of 2,000 college women about rape experiences in 2006 and found only 11.5% of college women in the sample reported their most recent/only rape experience to authorities, with only 2.7% of rapes involving drugs and/or alcohol reported (Wolitzky-Taylor et al., 2011). Minority status (i.c., non-White race) was associated with lower likelihood of report- EFTA_00001435 3502-014 Page 2 of 21 EFTA00156776

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Carretta et al. 1147 ing, whereas sustaining injuries during the rape was associated with increased likeli- hood of reporting. Currently, there is developing published evidence on rape reporting and disclosure. Using a prospective study to identify predictors of sexual assault disclosure, Orchowski and Gidyez (2012) examined the responses of 374 support providers and learned women most often disclosed a sexual assault to a female peer supporting the findings over 10 years ago by Smith et al. (2000). Despite the feminist movement of the 1970s, which marked the beginning of the era of rape reform in the United States, to fast-forward to 2013, two findings that affect a victim's mental health have not changed. First, sexual assault remains the most widely underreported violent crime and second, victims typically do not seck help after coercive sexual encounters (Fisher et al., 2003; Siegel, Golding, Stein, Bumam, & Sorenson, 1990). Second, statistics from the National Violence Against Women Survey (NVAWS) indicate that only 19.1% of the women and 12.9% of the men who were raped since their 18th birthday reported their rape to the police (Tjaden & Thoennes, 2006). Indeed, the underreporting of sexual assault persists in bearing the infamous label of “the hidden crime,” and poses serious problems on an individual and societal level (Grohol, 1997). Parallel with the incidence of rape being far more extensive than reported in official statistics is the fact that the large majority of rapists are never apprehended. In 2007, there were 90,427 incidents of rape reported to law enforcement that resulted in only 23,307 arrests or 25.8% of reported cases (U.S. Department of Justice, 2008). Victimization data show a higher number of rapes and sexual assaults—191,670 (Catalano, 2006)}—which means that potentially more than half of the rapes and sexual assaults go unreported (and therefore unpunished) to law enforcement (Fisher et al., 2003). Clearly, the vast majority of rapists are never brought to justice as FBI clear- ance rates for rape average about 50% per year. From a public policy perspective, official estimates of the incidence and prevalence of sexual assault that are used for planning program initiatives are likely underesti- mated; therefore, individuals and areas that are at high risk for sexual assault are likely failing to receive adequate attention. In addition, the failure to report precludes the arrest of offenders, which limits the degree to which the criminal justice system can serve as a deterrent to sexual assault crimes (Fisher et al., 2003). Rape and Self-Disclosure—Keeping a Secret With Silence The issue of self-disclosure—that information about oneself that a person is willing to reveal to others—is an important area of clinical inquiry. Rape traditionally has not been a socially acceptable issue for disclosure. In decades past, it has often been seen as something that lessened the worth of the victim and that was the victim's fault. Thus, Irving Goffman’s classic analysis of stigma and the management of spoiled identity are particularly useful in analyzing the disclosure of a rape. Goffman (1963) uses the term “stigma” to indicate “an attribute that is deeply discrediting” in a certain EFTA_00001436 3502-014 Page 3 of 21 EFTA00156777

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1148 Violence Against Women 21 (9) social context (p. 3). He distinguishes between cases where the stigma is known to others already or evident immediately (the individual is discredited), and cases where the stigma is not known by others and not immediately perceivable (the individual is discreditable). As Goffman states, when an individual's differentness is not immediately apparent, and is not known beforehand . . . then . . . the issue is . . . that of managing information about his failing. To tell or not to tell; to display or not to display; to let on or not to let on; to lie or not to lic; and in each case, to whom, how, when, and where (p. 40). The issue becomes “the management of undisclosed discrediting information about self” (p. 42). Secrets, especially those involving incest, rape, and abortion, are closely aligned with non-disclosure. Georg Simmel (1906) defines secrets as “consciously willed con- cealment” (p. 449) that involve a tension that when revealed breaks its power that can result in positive or negative outcomes. Secrecy sets barriers. A secret disclosed may advance to betrayal. Wolff (1950) describes a secret being surrounded by temptation and possibility of betrayal, and the external danger of being discovered is interwoven with the internal danger of giving oneself away. As long as the rape remains cloaked in secrecy, the victim only has to manage that information internally; once the rape is disclosed, the victim has to manage the external reactions. Jack (1991, 1999) and Jack and Ali (2010) describe the phenomenon of “silencing the self” as a behavior common to women where information is withheld in the context of all types of relationships. Whether a relationship is experienced with violence or through rape or without these experiences, Jack contends through her Theory of Silencing the Self that women do not share certain thoughts or feelings that would contradict what others expect of them because it jeopardizes relationships with others and how they are “seen.” Congruent with the social stigma that surrounds disclosure, women avoid conflict and silence their voice which often leads to a loss of self as well as feelings of shame and anger. Ironically, avoiding conflict and abiding by societal expectations are found to be protective and normative in many cultures, and yet Jack (1991) found in her original work that the very secret or silence kept was strongly cor- related with clinical depression. Jack and Dill (1992) identified four particular sub-concepts of silencing the self- behaviors from the qualitative analyses of data she collected through a large longitudi- nal study that included conversations with women talking about their lives and depression. The four self-silencing sub-concepts/behaviors are called (a) Silencing the Self, (b) the Divided Self, (c) Care as Self-Sacrifice, and (d) the Externalized Self. The first sub-concept/sub-scale, Silencing the Self, for which the theory was named described how women often do not ask directly for what they need or tell others what they are feeling. The second sub-concept’sub-scale, the Divided Self, described how women present a compliant exterior to the public when they actually feel hostile and angry. The third sub-concept/sub-scale, Care as Self-Sacrifice, described how women put the feelings and needs of another before their own. The fourth sub-concept/ EFTA_00001437 3502-014 Page 4 of 21 EFTA00156778

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Carretta et al. 1149 sub-scale, the Externalized Self, described how women judge themselves by external standards. In the end, the “self” for women is focused in a context of others’ needs, and it is the “self-in-relation” that drives behavior choices to disclose or not to disclose Qack, 1991; Jordan, Kaplan, Miller, Stiver, & Surrey, 1991). The issue of rape disclosure and moving away from silencing one’s voice has psy- chosocial and clinical importance. One model of rape counseling is to encourage cli- ents to report and talk to members of their social network as support for experiencing a stressful situation. The dilemma, however, is that the decision to tell or not to tell someone about a rape tends to be a difficult one and many women will experience decisional conflict that is related to the uncertainty regarding outcomes that will result from the choice. Regret of disclosure emerges as a potential outcome (Marchetti, 2012). Not to disclose can be viewed as self-protective as the individual has control of the information and preserves relationships without conflict (Jack, 1991). Telling oth- ers dilutes the control. We were interested in studying pattems of rape disclosure as basic to assessing coping and adaptation to a traumatic event. This article presents data from a larger rape study with the intent to provide specific implications for counseling victims regarding disclo- sure of the information. Thus, the research questions for this study were as follows: Research Question 1: What was the pattern of disclosure for rape using an anony- mous web-based survey? Research Question 2: What was the symptom response based on whether the respondent had disclosed prior to the survey or disclosed at the time of survey? Research Question 3: What type of follow-up was preferred by respondents? Method Design This study utilized a descriptive cross-sectional design. Participants completed the study via REDCap Survey, a web-based, online survey tool. Online surveys have been established as an effective means of obtaining a large sample of rape victims (Littleton, 2007, 2010). Setting Data were collected via an online survey. A web-based procedure was chosen as it has several benefits. First, the use of a web-based survey has been established as an effec- tive means of obtaining a large sample of rape victims (Littleton, 2007, 2010). Furthermore, the use of an online study allows for climination of missing data by prompting participants to address non-completed items. Finally, this methodology was selected because it offers participants the ability to complete study instruments at their convenience, offers privacy and confidentiality at the time of participation, and affords the participant an opportunity for safe disclosure. EFTA_00001438 3502-014 Page 5 of 21 EFTA00156779

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1150 Violence Against Women 21 (9) A script was available online as soon as the participant accessed the study link via REDCap Survey. Potential participants were screened online. Once an exclusion crite- rion was met, no other information was gathered. If deemed eligible, the subjects were provided with informed consent. After they read and acknowledged understanding by answering three questions covering material contained within the consent, the partici- pant was allowed to proceed to access the study packet online. All information was collected via participant self-report. Participants were allowed to save responses online and return to finish the packet at their convenience. If the participant elected to log off and log back on to complete the study packet, the first screen reiterated the fact that nobody would be able to contact them for any reason. All data collected from partici- pants were kept online. Questions were created by the principal investigator to determine whether the par- ticipant had previously (before answering this survey) disclosed that they had an unwanted sexual experience (completed rape), to whom they disclosed if they affirmed disclosure, and their preferences for follow-up. The questions relative to prior disclo- sure were contained in the beginning of the survey and were as follows: (a) Is this the first time you are disclosing that you had an unwanted sexual experience? Yes/no; (b) If you have told one or more people about this incident, whom did you tell? Please check all that apply; (c) If you checked “other” above, please fill in the relationship you have with the person you told about the most recent incident of unwanted sexual contact. Please do not put in a personal name but only identify your relationship with that person. Branching logic was employed, so that participants would only see Questions 2 and 3 if they answered “no” to Question Number 1. The question relative to follow-up preferences was contained toward the end of the survey and stated: For experiences such as the one I had, | feel more comfortable disclosing the situation: (a) online anonymously with no way for anyone to re-contact me, (b) online with a way that someone could follow-up with me in the future, (c) in person face-to-face, (d) on the telephone anonymously with no way for anyone to re-contact me, and (¢) on the telephone with a way that someone could follow-up with me in the future. Sample This study included a convenience sample of 242 adult female victims of completed rape drawn from the population of females aged 18-64 in the United States and inter- nationally. The subjects recruited into the study met the following inclusion criteria: (a) between the ages of 18-64, (b) $5 years since their most recent incident of rape, (c) ability to understand English, (d) no recent report of psychosis, (¢) the ability to com- plete study instruments, and (f) female gender. Individuals were excluded if they met the following exclusion criteria: (a) most recent incidence of rape happened while participant was <18 years of age, (b) unable to understand the informed consent as evidenced by incorrectly answering three, and (c) questions designed to determine understanding the content of the study. Determination of an incidence of rape for inclusion was screened for using the Sexual Experiences Scale Short Form Victimization (Koss et al., 2007; Koss & Gidyez, 1985). EFTA_00001439 3502-014 Page 6 of 21 EFTA00156780

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Carretta et al. 1151 The sample was recruited in a variety of ways. First, recruitment was accomplished using email messages inviting participation in the survey. Emails were sent out through ResearchMatch as part of an opt-in list of individuals who had previously given their contact information for that purpose, as well via the clinical trials registry maintained by the sponsoring University. A description of the study along with a link was pro- vided in the email. This link led to the dedicated study website, specifically designed to provide comprehensive information on the study, a toll-free telephone number to contact a live person if the potential participant so chose, and a link that would provide direct access to the study itself. Responses went directly into the REDCap survey sys- tem, designed and maintained by Vanderbilt University. This provided a tracking mechanism for responses, prevented the release of any information and/or data to an outside server, and increased response rates. Additional methods included the following: informative advertisements placed on national screening and online support websites, and in domestic violence shelters, rape crisis centers, offices of psychiatrists, and psychotherapists, local emergency room departments, primary care office lobbies, and public venues such as college bulletin boards, grocery stores, bathroom stalls, libraries, social media sites such as Facebook, and police departments. Other techniques included posting informative public service announcements on local radio channels and direct marketing of the study online to organizations in which the principal investigator is affiliated. Specialist health care providers, home health agencies, church groups, and support groups may also have referred participants to the study based on flyers supplied to their organizations. Strategies to enhance participant recruitment and retention included ensuring ano- nymity, with no way to link any participant to any particular response, and the ability to complete the study packet in more than one sitting. All information was collected via participant self-report, and Institutional Review Board (IRB) approval was given by the University of Medicine and Dentistry of New Jersey. Participants were allowed to save responses online and return to finish the packet at their convenience. All data collected from participants were kept online. Answers to survey questions determined whether the participant had previously (before answering this survey) disclosed that they had an unwanted sexual experience, to whom they disclosed if they affirmed disclosure, and their preferences for follow-up. Branching logic was employed, so that participants would only see Questions 2 and 3 if they answered “no” to Question Number 1, Also used in this data analysis were questions related to current mental health and three standard measurement tests for anxiety (State Trait Anxiety Inventory—trait portion only), depression (Beck Depression Inventory II; BDI-II), and PTSD (Posttraumatic Stress Diagnostic Scale; PDS). Participants were also asked questions related to their insurance status at the time of their most recent assault and questions related to medications they currently take for anxiety, depression, or sleep disturbance. There was no compensation for study completion. A total of 384 com- pleted the study consent form and at least some portion of the study. Of those, 242 (63%) completed all the study instruments sufficiently for inclusion in the analysis of the research questions. There were no statistically significant differences between the completers and non-completers on any demographic factor. EFTA_00001440 3502-014 Page 7 of 21 EFTA00156781

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1152 Violence Against Women 21 (9) The 242 participants ranged from 18-56 years in age with a median age of 27 years (25th-75th Interquartile Range (IQR): 23.8/33.3). The sample was primarily Caucasian (n = 218, 90%), with the remaining identifying themselves as African American (n = 18, 7%) or other (n = 6, 3%). The majority of the sample reported being single/not partnered (1 = 185, 76%). Participants lived in all regions of the United States; Northeast (nr = 41, 17%), Southeast (n = 18, 8%), Midwest (n = 40, 17%), South (n = 97, 41%), and West (n = 20, 9%) with 9% reporting living outside the United States ( = 20). Although the majority of the sample was well educated and reported having at least a bachelor's (n = 100, 41%) or a master's degree (n = 54, 23%), they were less affluent, with 70% of the sample reporting incomes of USS60,000 or less (range <US$25,000 to >US$100,000). The majority of the sample ( = 171, 71%) reported having no children or having any religious preference (1 = 146, 60%). Those reporting having non-governmental health insurance Point of Service (POS), Preferred Provider Organization (PPO), Health Maintenance Organization (HMO) was slightly higher ( = 143, 59%) than those having insurance that was government subsidized (Medicaid, Medicare, MediCal; = 99, 41%). The majority of the sample (96%) denied living with their abuser (n = 232). Frequency distributions summarized the number of participants who reported non- disclosure before the survey and those who had disclosed prior to the survey. Cross- tabulations were constructed to determine the percentages of individuals who affirmed first-time disclosure with reporting of follow-up preferences. The chi-square test of independence was used to test for differences in the distributions. Findings The demographic characteristics of those citing first-time disclosure and those report- ing having disclosed previously are summarized in Table 1. Statistically significant differences between the two groups were observed in ages of the participants and pres- ence of children. A higher proportion of those stating first-time disclosure reported having children ( = 24 of 58, 41%) than in the group citing prior disclosure (n = 47 of 137, 34%). Those who admitted to first-time disclosure were, on average, older than those who cited previously disclosing. While not statistically significant (p = .055), within the group citing first-time disclosure approximately half (m = 30 of 58, 51.7%) reported having some form of governmental subsidized insurance, while a consider- ably smaller respective proportion (” = 69 of 184, 37.5%) was seen in the group citing prior disclosure. There were no statistically significant differences between the first-time and non- first-time respondents in terms of type of unwanted experience, nor for relationship between the perpetrator and victim (see Table 2). Finally, there was no statistically significant difference between the respondent groups in terms of type of follow-up preferred (p = .153). The majority of participants, EFTA_00001441 3502-014 Page 8 of 21 EFTA00156782

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Caretta et al. 1153 Table |. Descriptive Statistical Summaries of Consenved Individuals First Time Disclosing and Not First Time Disclosing Swudy Variables—Demographics. First ime disclosed —_ Nort first disclosure (n = 58) (n= 184) Characteristic n (%) n(%) p value Race 582 Caucasian 51 (87.9) 167 (90.8) African American 6 (10.3) 12 (6.5) Other 1 (17) 5 (27) Education 774 12th grade/GED 5 (8.6) 10 (5.4) Some college—Did not graduate 13 (22.4) 34 (18.5) 2-year degree 7 (121) 19 (10.3) 4-year degree 22 (37.9) 78 (42.4) Graduate degree 11 (19.0) 43 (23.4) Marical status 635 Single/not partnered 43 (74.1) 142 (77.2) Married/partnered 15 (25.9) 42 (22.8) Residence area 702 Northeast 7 (13.0) 34 (18.7) Southeast 6 (IL) 12 (6.6) Midwest 10 (18.5) 30 (16.5) South 24 (44.4) 73 (40.1) West 3 (5.6) 17 (9.3) Outside the United Staves 4(74) 16 (8.8) Children 021 Yes 24 (41.4) 47 (25.5) No 34 (48.6) 137 (74.5) Health insurance type O55 Governmental (Medicare, 30 (51.7) 69 (37.5) Medicaid, etc.) Non-governmental 28 (48.3) 11S (62.5) Religious preference 218 Roman Catholic 1424.1) 24 (13.0) Protestant 11 (19.0) 36 (19.6) Jewish 3 (5.2) 4(22) Muslim 0 (0.0) 1 (0.5) Buddhist 0 (0.0) 3 (1.6) No preference 30 (51.7) 116 (63.0) Annual household income 553 Less than US$25,000 14 (24.1) 44 (25.1) US$26,001-US$40,000 12 20.7) 48 (27.4) US$40,001-US$60,000 14 (24.1) 29 (16.6) (continued) 3502-014 Page 9 of 21 EFTA_00001442 EFTA00156783

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1154 Violence Against Women 21 (9) Table |. (continued) First time disclosed Not first disclosure (n = 58) (n = 184) Characteristic n (%) n (%) p value US$60,001-US$80,000 (17) 12 (6.9) US$80,001-US$ 100,000 6 (10.3) 13 (7.4) More than US$100,000 6 (10.3) 14 (8.0) Prefer not to answer 5 (8.6) 15 (8.6) Currently lives with abuser 324 Yes 4 (6.9) 7 (3.8) No 54 (93.1) 177 (96.2) Median (IRQ) Median (IRQ) Age .003 Age (years) 31.5 (23.0,42.3) 27.0 (24.0, 32.0) Note. With the exception of age, x? Tests of Independence were used to test for differences between the respondent groups. A Mann-Whitney Test was used for that respective test for age GED = general education diploma IRQ = interquartile Range. Table 2. Descriptive Statistical Summaries of Consented Individuals First Time Disclosing and Not First Time Disclosing—Type of Unwanted Experience and Perpetrator/Vietim Relationship. First dime Not first disclosure disclosed (n = 58) (n= 184) Characteristic n (3) n (%) p value Type of unwanted experience 186 Forcible rape 28 (48.3) 117 (63.6) Pressured sex 11 (19.0) 29 (15.8) Sex stress 4 (69 7 (38) Multiple types 15 (25.9) 31 (16.8) Perpetrator/vicuim relationship O91 Incimace partner 26 (44.8) 71 (38.6) Non-intimate known 28 (48.3) 78 (42.4) Stranger 4 (6.9) 35 (19.0) Total 58 (100) 184 (100) Note. 72 Tests of Independence were used to test for differences between the disclosure groups. both those who had previously disclosed (m = 123, 70.3%) and those had who admitted to first-time disclosure (n = 46, 79.3%), reported they preferred online follow-up to both the face-to-face and telephone options (Table 3). EFTA_00001443 3502-014 Page 10 of 21 EFTA00156784

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Carretta et al. 1155 Table 3. Descriptive Statistical Summaries of Consented Individuals First Time Disclosing and Not First Time Disclosing Study Variables—Disclosure and Follow-Up. First cime Not first disclosure disclosed (n = 58) {n= 175) Characteristic n(%) n (3) p value Follow-up preferences -1S3 Online 46 (79.3) 123 (70.3) Telephone 6 (10.3) 14 (8.0) Face-to-face 6 (10.3) 38 (21.7) Note x? Tests of Independence were used to test for differences between the disclosure groups. Table 4. Descriptive Statistical Summaries of Consented Individuals First Time Disclosing and Not First Time Disclosing Seudy Variables—Medication Use. First time Not first disclosure disclosed (n = 58) (n= 184) Characteristic n(%) n (%) p value Depression medication 57I Yes 16 (27.6) 58 (31.5) No 42 (72.4) 126 (68.5) Anxiety medication 574 Yes 13 (22.4) 48 (26.1) No 45 (77.6) 136 (73.9) Sleep medication 635 Yes 15 (25.9) 42 (22.6) No 43 (74.1) 142 (77.2) Note. 72 Tests of Independence were used to test for differences between the disclosure groups. Post Hoc Analysis of Disclosure Groups Current use of medication for depression, anxiety, and sleep disturbances for those who had previously disclosed and those who had not is summarized in Table 4. There were no statistically significant differences in the rates of use of the types of medica- tion between the groups. Follow-up with providers for physical and emotional injuries was evaluated for those who had previously disclosed and those who had not (summaries in Table 5). Results indicated that there was a statistically significant difference between the groups in rates of secking treatment for emotional injuries with both medical provid- ers (p = .003) and non-medical therapist/counselors (p < .001). In both cases, a higher proportion of those admitting to first-time disclosure reported never secking treatment 3502-014 Page 11 of 21 EFTA_00001444 EFTA00156785

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1156 Violence Against Women 21 (9) Table 5. Descriptive Statistical Summaries of Consented Individuals First Time Disclosing and Not First Time Disclosing Study Variables—Rape Resource Uullization. First time Not first disclosure disclosed (n = 58) (n = 184) Characteristic n(%) n (%) p value Medical practioner for physical injuries OSS Never 53 (91.4) 138 (75.0) Once or twice 4(6% 38 (20.7) 3-5 times 17) 4 (2.2) More than 5 times 0 (0.0) 4 (22) Total 58 (100) 184 (100) Medical practidoner for emotional injuries 003 Never 52 (89.7) 119 (64.7) Once or twice 2@4) 24 (13.0) 3-5 dimes 2@4) 12 (6.5) More than 5 times 2@4) 29 (15.8) Total 58 (100) 184 (100) Non-medical cherapisvcounselor for <00! emotional injuries Never 46 (79.3) 78 (42.4) Once or twice 5 (8.6) 21 (11.4) 3-5 times 469 12 (6.5) More than 5 times 3 (5.2) 73 (57.8) Total 58 (100) 184 (100) Lawyer for injuries 218 Never 56 (96.6) 160 (87.0) Once or twice iy) 9 (4.9) 3-5 dimes 0 (0.0) 5 (27) More than 5 times 17) 10 (5.4) Total 58 (100) 184 (100) Called police 009 Yes 5 (8.6) 45 (24.5) No 53 (91.4) 139 (75.5) Total 58 (100) 184 (100) for emotional injuries from a medical provider (52 of 58, 90%) or a therapist/coun- selor (46 of 58, 79%) than those who had previously disclosed (65% and 42%, respec- tively). The overwhelming majority of those citing first-time disclosure (n = 46, 70.3%) reported that they had never seen a non-medical therapist/counselor for emo- tional injuries, whereas the majority (57.8%) of those citing prior disclosure reported seeing a therapist/counselor more than 5 times. As expected, given that one group cited no prior disclosure, there was a statistically significant difference in reporting the assault to police. EFTA_00001445 3502-014 Page 12 of 21 EFTA00156786

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Carretta et al. 1157 Table 6. Descriptive Statistical Summaries of Consented Individuals First Time Disclosing and Not First Time Disclosing Study Variables—Blame. First dme Not first disclosure disclosed (n = 58) (n = 184) Characteristic n (%) n (%) p value Feels good about self -206 Yes 26 (44.8) 100 (54.3) No 32 (55.2) 84 (45.7) Feels abuse was their faule 001 Yes 37 (63.8) 72 (39.1) No 21 (36.2) 112 (60.9) Table 7. Differences Between Groups for Disclosure Follow-Up Preferences and Outcomes (Depression and Anxiety). First ime Not first disclosure disclosed (n = 58) (n = 184) M (SD) M (SD) F(df= 1,240) pvalue =? BDI-II 227 (15.0) 21.1 (13.8) 053 466 <0! STAI-Y (trait) 52.4 (12.3) 50.9 (14.1) 054 465 <01 Note, MANOVA was used to test for differences in depression and anxiety among the groups. Wilks's lambda = .998, F(l, 240) = 0.286, p = 751, BDL = Beck Depression Inventory ll. STAI-Y = State Trait Anxiety Inventory-Form Y. The difference in the rates of feeling good about oneself between the groups was not statistically significant (45% vs. 54%), yet there were statistically significant dif- ferences in the reported belief that the abuse was their fault with 63.8% of those report- ing first-time disclosure believing that the abuse was their fault versus 39.1% of those with prior disclosure (Table 6). Further analysis was completed to determine whether differences exist in rape trauma presentation/symptomatology (depression, anxiety) and diagnosis of PTSD among women who have and have not disclosed the event. Descriptive summaries of the two groups are presented in Table 7. There were no sta- tistically significant differences between the groups in terms of depression (p = 466) or anxiety (p = 465; Table 7). In addition, there were similar proportions of those who met the criteria for a diagnosis of PTSD (p = 481) within each of the groups (Table 8). Most respondents (76%) in this study had disclosed an unwanted sexual experience that happened within the previous 5 years. Of clinical interest, however, 24% had never disclosed until asked on this survey. Of the 184 who had previously disclosed, persons told included friends; medical professionals; family members; spouse or part- ner; police, coworkers: clergy; academic staff; domestic violence; rape crisis, and hot- line staff; with one woman disclosing to a local newspaper. EFTA_00001446 3502-014 Page 13 of 21 EFTA00156787

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1158 Violence Against Women 21 (9) Table 8. Summaries for Disclosure and PTSD. First time Not firse disclosure disclosed (n = 58) (n= 179) 1 (%) n (%) p value PDS A8l With PTSD 29 (50) 80 (45) Without PTSD 29 (50) 99 (55) Note. PTSD = posttraumatic stress disorder; PDS = Posttraumatic Stress Diagnostic Scale. Discussion The decisional conflict around disclosing a rape either to others or to police has a long history. That almost a quarter (24.5%) of this sample reported to police is closer to the 19% suggested by Tjaden and Thoennes (2006) but less than the 47% reported by Catalano et al. (2009) (Fruch et al., 2000). Not only is rape a seriously underreported crime, it is also an undertreated crime. Only a small number of women seck treatment, with one fifth or 21% sought treatment from a medical provider for an emotional injury and almost half (49%) from a coun- sclor ora therapist. This pattern is somewhat different than that suggested by Amstadter, McCauley, Ruggiero, Resnick, and Kilpatrick (2008), who reported that 38% sought treatment from a medical professional and 54% from a mental health specialist. Medication use in our study was low in contrast to Smith et al. (2005) who reported that visits to providers to obtain prescriptions for anti-depressants rose dramatically between 1995 and 1996 from 13.8 visits to 35.5 visits (Smith et al., 2005). Plichta and Falik (2001) report a significant relationship between intimate partner violence and taking medication for depression and anxiety (Plichta & Falik, 2001). We found almost identical rates for those reporting crimes in this study perpetrated by an intimate part- ner (n = 97) and non-intimate known (n = 106). There were significantly less reported incidents by a stranger in this sample (n = 40). This finding agrees with most prior studies (Basile, Chen, Black, & Saltzman, 2007; Johnson, Zlotnick, & Perez, 2008; Littleton, 2007, 2010; Plichta & Falik, 2001; Tjaden & Thoennes, 2006) but disagrees with the findings by other researchers (Frazier, 2003; Resick, Jordan, Girelli, Hutter, & Marhoefer-Dvorak, 1988), where about half of the participants were found to have been raped by a stranger. There were 30% (n = 74) of women in our study who reported taking anti-depres- sant medication with 25% (n = 61) taking medication for anxiety and 24% (m = $7) for sleep disturbances. These findings could be due to the low rate of treatment for emo- tional injuries. However, almost half (48"%) reported that they do not feel good about themselves since their most recent abuse incident, and 45% said they feel the most recent incident of abuse was their fault. This pattern is consistent with other studies specific to rape, citing self-blame as significantly related to psychological distress (Frazier, 2003; Koss, Figueredo, & Prince, 2002; Najdowski & Ullman, 2009). EFTA_00001447 3502-014 Page 14 of 21 EFTA00156788

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Carretta et al. 1159 There are several limitations that are noteworthy. First, the sample did not use random sampling and was comprised of a convenience sample of adult participants who self-reported one or more incidents of rape within the past 5 years. This approach limits generalizability of the study to those participants who were aware of the study based on the limited recruitment mechanisms employed and decided to participate, and the findings cannot necessarily be generalized to survivors of other possible traumatic experiences. Second, this study was a cross-sectional design, and therefore no causal inferences can be made. Third, the instruments used in this study were not necessarily specific to rape, and thus may have more limited ability to assess certain symptoms or outcomes specific to an experience of rape such as fear of sexual contact. Another example exists related to the measure of PTSD. Although this measure mentions the concept of rape as one possible traumatic experience, it cannot be determined by virtue of the questionnaire if the diagnosis of PTSD is solely or most significantly related to the rape experience. Furthermore, the measure of PTSD was distinctly different from the measures of depression and anxicty, in that the measure of PTSD did not measure the continuum of symptoms. It is likely that more and stronger associations would have been found if the mea- sure had allowed for measurement on a continuum. Fourth, the preference for online follow-up (as opposed to face-to-face or telephone) may be an artifact of the chosen methodology. That is to say, women more likely to self-select for participa- tion in an online study regarding sexual experiences and disclosure may also be more likely to (a) be frequent Internet users and (b) prefer e-based communication. Finally, this study did not ask individuals the reason they chose to disclose to cer- tain persons. Ullman and Filipas's (2001) study on 323 sexual assault victims reported that disclosing the sexual assault to more persons was related to more negative and positive reactions. Given the equivocal findings, it is strongly recom- mended that this question be asked in future research. Rape-Related Dynamics Carter-Snell and Jakubec (2013) conducted an in-depth analysis of 100 data-based articles (of a total 2,116) on interpersonal violence to determine the relative impact of selected risk and resiliency factors pertaining to mental health impacts. As mental health counselors can do little about risk factors after the assault (¢.g., severity of vio- lence, prior trauma), our focus is on secondary prevention and identification of resil- ience factors. Our study found that irrespective of disclosure, victims of rape do not readily seek treatment for psychological or symptom remediation when we know that silenc- ing themselves in addition to the experience of trauma is highly correlated with clinical depression (Jack, 1991; Jack & Ali, 2010). In trying to explain this lack of victim help-seeking behavior, several researchers have put forth suggestions. Koss (1994) posited that interviewer effects and other factors such as others overhearing an interview may be responsible for victims’ unwillingness to disclose (Koss, 1994). Campbell, Dworkin, and Cabral (2009) focus on the negative mental health effects EFTA_00001448 3502-014 Page 15 of 21 EFTA00156789

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1160 Violence Against Women 21 (9) of rape, instead of the recovery aspect, and consider the role of personality charac- teristics, preexisting mental health conditions, biological/genetic factors, use of force and/or threats, and substance use not examined in previous models (Campbell et al., 2009). Campbell, Wasco, Ahrens, Sefl, and Barnes (2001) and Ledray (1998) suggest that the avoidance of treatment could be due to fear that counseling could result in (a) further incidence of abuse (¢.g., perpetrator becomes aware that victim is disclosing) or (b) re-traumatization based on having to recount the story over and over again (¢.g., to multiple medical practitioners, law enforcement; Campbell et al., 2001; Ledray, 1998). Jack (1991) would support the notion that women in violent and non-violent situations struggle to be direct, open, and honest with what they need and feel because of the more dangerous feeling of losing relationships with others if they did so. The researchers argue that the impact of disclosure by their autonomous voice is integral to victims’ post-assault psychological healing, and that should victims of rape blame themselves, they may not disclose the event to anyone. They continue to sug- gest, as does Kilpatrick et al. (1992), that failure to disclose is probably resulting in inadequate treatment and that failure to disclose then denies them opportunities for support (Grohol, 2011). A major finding in this study was the importance of self-blame as diagnostic of the non-disclosing group. Self-blame reflects a psychosocial mechanism of self- criticism and low self-evaluation in which the individual accepts personal respon- sibility for negative events. Janoff-Bulman's (1979) classic study of self-blame in rape victims distinguishes two types of self-blame—behavioral and characterologi- cal. Behavioral self-blame is control related, involves attributions to a modifiable source (one’s behavior), and is associated with a belief in the future avoidance of a negative outcome. Characterological self-blame is esteem related, involves attribu- tions to a relatively non-modifiable source (one's character), and is associated with a belief in personal deservingness for past negative outcomes. Self-blame is another way of translating Jack and Dill’s (1992) findings that women often put others before themselves (care as self-sacrifice). In her study of 38 rape crisis centers, behavioral self-blame, and not characterological self-blame, emerged as the most common response of rape victims to their victimization, suggesting the victim's desire to maintain a belief in control, particularly the belief in the future avoidabil- ity of rape. Given that our study found that the percentages of those with and without PTSD in both the disclosure and non-disclosure groups were almost identical, we suggest atten- tion be given to the power of self-blame, secrecy, and non-disclosure as self-protective mechanisms. The lack of significant differences between the disclosure groups sug- gests that rape trauma is present irrespective of disclosure, and that disclosure in itself is not cathartic to the point that rape survivors experience symptom remission. But self-blame appears to be an incapacitating factor in the recovery process. This self- blame finding could be attributed to the fact that those who have previously disclosed may have sought professional treatment, and thus may have worked toward resolution of self-blame. EFTA_00001449 3502-014 Page 16 of 21 EFTA00156790

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Carretta et al. 1161 Implications for Practice Carter-Snell and Jakubec (2013) argue that effective secondary prevention of adverse mental health consequences following rape depends upon the identification of resil- ience factors. This would allow the professionals to draw on these strengths to pro- mote the client and to shape interventions in a manner informed by evidence. An example would be to help the individual to reframe events to reduce self-blame, or to identify individuals or agencies that may provide positive reactions and supportive resources. In addition, Carter-Snell and Jubenec (2013) recommend studying the men- tal health impact of education programs for the community, police, and health profes- sionals related to the use of responses such as psychological first aid and positive responses to rape disclosures. Rape involves concer regarding disclosure, secrecy and self-silencing, stigma and the organizing emotion of self-blame. In a sense, this requires counselors to assume a role as a clinical detective in assessing for the red flags with non-disclosing clients. Inguiry about any type of unwanted sexual experience needs to be considered of all clients with the knowledge that it may take some time for an affirmative answer to surface. For those clients who do disclose, we recommend that this issue of disclosure and self-blame be part of a counseling plan that is aimed at helping victims talk through the positives and negatives of disclosure and to help the victim predict those they tell (or have told) will be supportive and understanding, or blaming. The steps that counselors and therapists can take for counseling the victim on the issue of self-disclosure include the following: 1. Gather information from the victim to help make a prediction whether those told will be supportive or not. Inquire about the person's prior reaction to stressful news. 2. Have the victim predict the person's reaction. Weigh the advantages of telling with the disadvantages of telling. 4. Support the victim’s decision whichever side she or he wishes to take. Talk through what is anticipated in terms of support as well as if the person told turns out to blame or discredit the victim. Be sure the victim can handle both reactions. 5. Request that the victim report back the reaction to the counselor to provide support for whichever way the reaction went. Additional counseling will be needed if the person blamed the victim and was not supportive. » Summary Disclosure of unwanted sexual experiences remains a major problem. To date, there is no study within the past 10 years that has attempted to update incidence and preva- lence. Moreover, the reports that do exist present divergent findings. To pursue devel- opment of studies aimed at testing prolific treatment interventions, we must first glean EFTA_00001450 3502-014 Page 17 of 21 EFTA00156791

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1162 Violence Against Women 21 (9) a more accurate and concrete understanding of the true depth of the number of survi- vors and also begin to identify more acceptable methods for disclosure. Web-based anonymous surveys have demonstrated effectiveness in other popula- tions. The finding that regardless of the disclosure pattern, the majority of respondents supported online counseling was impressive. The overwhelming majority of partici- pants in both groups cited that online follow-up was preferred to cither telephone or face-to-face contact. Brief and colleagues (2013) were able to successfully recruit 600 Operation Enduring Freedom (OEF) and Operation Iraqi Freedom (OIF) veterans into an alcohol and PTSD treatment study online in about 6 weeks. The outcomes showed favorable effects on (a) drinking days, (b) percent heavy drinking days, (c) average drinks per drinking day, and (d) PTSD symptomatology. The advantage of this approach is the potential for an incredible reach to those in rural areas, to those unable or unwilling to combat the stigma, and to those who live in areas with few mental health resources. Given this study's findings that regardless of disclosure pattern, individuals prefer the use of the Internet to traditional counseling modalities. Thus, it is reasonable to assert that this method could be optimal for providing the most cohesive and accurate estimates to date from a broad, diverse population. Declaration of Conflicting Interests The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article. Funding The author(s) received no financial support for the research, authorship, and/or publication of this article. References Amstadter, A. B., McCauley, J. L., Ruggiero, K. J., Resnick, H. S., & Kilpatrick, D. G_ (2008). Service utilization and help seeking in a national sample of female rape victims. Psychiatric Services, 59, 1450-1457. doi:10.1176/appi.ps.59, 12.1450 Basile, K. C., Chen, J., Black, M. C., & Saltzman, L. E. (2007). Prevalence and characteristics of sexual violence victimization among U_S. adults, 2001-2003. Violence and Vietims, 22, 437-448. Brief, D., Rubin, A., Keane, T., Enggasser, J. L., Roy, M., Helmuth, E., et al. (2013). Web inter- vention for OEF/OIF veterans with problem drinking and PTSD symptoms: A randomized clinical trial. Journal of Consulting and Clinical Psychology, 81, 890-900. Campbell, R., Dworkin, E., & Cabral, G. (2009). An ecological model of the impact of sexual assault on women's mental health. Trauma, Violence, & Abuse, 10, 225-246. Campbell, R., Wasco, S. M., Ahrens, C_ E., Sefl, T., & Barnes, H. E. (2001). Preventing the “second rape”: Rape survivors’ experiences with community service providers. Journal of Interpersonal Violence, 16, 1239-1259. Carter-Snell, C., & Jakubec, 8. L. (2013). Exploring influences on mental health after interper- sonal violence against women. Jnternational Journal of Child, Youth & Family Studies, 4, 72-99. EFTA_00001451 3502-014 Page 18 of 21 EFTA00156792

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Carretta et al. 1165 Wolitzky-Taylor, K. B., Resnick, H. S.. McCauley, J. L., Amstadter, A. B., Kilpatrick, D. G.. & Ruggiero, K. J. (2011). Is reporting of rape on the rise? A comparison of women with reported versus unreported rape experiences in the National Women’s Study-Replication. Journal of Interpersonal Violence, 26, 807-832. doi:10_1 17708862605 10365869 Wolff, K. H. (ed.). (1950). The soctology of georg simmel. New York, NY: Simon & Shuster. Author Biographies Carrie M. Carretta, PhD, APN-BC, AHN-BC, PMHNP. is an assistant professon'research faculty at Rutgers, the State University of New Jersey, Newark, NJ, and has a private psychiatric nursing practice. Ann W. Burgess, DNSc, APRN, BC, FAAN, is professor of psychiatric nursing at the William F. Connell School of Nursing, Boston College, Chestnut Hill, MA, and has a private psychiatric nursing practice. Rosanna DeMarco, PhD, RN, PHCNS-BC, APHN-BC, FAAN, is chair and professor. Department of Nursing, University of Massachusetts Boston, College of Nursing and Health Sciences, Boston, MA. EFTA_00001454 3502-014 Page 21 of 21 EFTA00156795